Wednesday, September 09, 2009

Update!

I frequently think about updating Ben's blog, but somehow never find the time to do this. I must be a busy mother of 5. Ben has come a long way since I started this blog. He is enjoying his 3rd year of preschool, and can't wait for kindergarten next year. His twin goes to half-day K, so Ben is eagerly anticipating the amazing day when he can go too...so am I. Ben decided it would be a good thing to be potty-trained about a month ago. I was elated when I realized my diaper buying days were finally over. It had been about 14 1/2 years of that, so I am happy to graduate, and so is my pocketbook. Ben is making good strides in school this year and his teacher can tell a difference between what he is doing now versus last year. He is learning his letters and their sounds. He will start soccer soon.

Ben continues to struggle with his eating. There is nothing about eating that comes naturally to him. I gave him his food this morning at 6:30am, and he is still sitting there at 10:30. If I don't coach him every step of the way, or just feed him, this is the result. He has no hunger or thirst, and the daily routine of eating does not seem to register. He is still eating watery, smooth purees, and can't seem to advance beyond that. Sometimes I get so frustrated by the lack of progression. I wish there was a switch I could just turn on.

Because of the lack of progress, and Ben's resistance to eating, we have decided to try another intensive feeding clinic. We will not be going to the same one, and this one will be more inpatient. I will take him for an evaluation by their team of specialists in a couple months, and then go on the waiting list for probably another 6-7 months for the program. It sounds so far away, but the fact that there may be help on the horizon is somehow invigorating.

I will update this blog when I return from the evaluation. Till then, I will hope for better eating days.