Wednesday, January 27, 2010

Finally...a Call!

Today the clinic called, and they are ready to start our paperwork. Hooray! They will be verifying insurance benefits, and getting Ben's case put together for insurance's medical review and precert. I am hoping that this process takes less than two weeks, and then they will call me again as they send off the case to the insurance company. This renewed my hope that I could actually be there in March. It was difficult for me to contain my excitement today.

Saturday, January 23, 2010

Still Waiting!

We are still waiting for a call from the clinic. I have explained things to Ben, and he, too, can hardly wait. Today he would not eat on his own. We are trying to promote self-feeding, but it is not going well. We feel that he is 5 years old, and is fully capable of picking up a spoon and feeding himself. It is age appropriate. So, we plunked him into his seat at the table at 8:15, and there he sat. He got up to go to the bathroom, and then sat again. I don't know who was more frustrated by the situation, Ben or us. He kept saying he was tired of being on the waiting list, and fussing. He only has 8 oz. of puree, and 6-7 oz. of milk to drink in a sitting, and it would take most of us only minutes to complete that, but it takes him hours. We left this afternoon at 4pm for our weekly date night, and he was still working on his lunch. He had all of his milk left, and about 3 oz. of puree. We do this everyday, and everyday is the same, unchanging monotony.
The wait list is killer!

I realized that when I go to the clinic, they will be feeding Ben all day for me, Monday through Friday. The beauty of that is that I can take Ben home at night, and simply enjoy him. I will not be under pressure to get a certain amount of food into him, and I won't have to feel the anger and frustration toward him that I usually feel. That would be pure bliss for me. Our relationship is so difficult and complex, if not downright painful.

Saturday, January 09, 2010

There is hope!

On Wednesday, I spoke with one of the contacts at the clinic, and she gave me hope that this trip to the clinic may happen. I needed to know what I should do with our new insurance information, and I had questions about how the whole process would go. She told me that they would call me to let me know they were sending paperwork to the insurance company for review and authorization, and that the whole process has been streamlined at our new insurance company. The insurance even has a point of contact for the clinic. That is amazing! I have gone from little hope, to a whole new level of hope. I asked her for a ballpark estimate of the time when we might be able to go, and she said the list has changed quite a bit since we were there for our eval in the end of October, and she thought we could get into the program in the month of April almost for sure, and possibly the month of March. I can hardly wait!